Our goal is to create a happier and longer life for patients with cystic fibrosis.

CF Hero - mobilní aplikace pomáhající zlepšit život lidem s cystickou fibrózou - obrazek "Kyslika"
CF Hero - mobilní aplikace pomáhající zlepšit život lidem s cystickou fibrózou - obrazek "Kyslika"
CF Hero tým, Honza, Babu, Marek

Our goal is to create a happier and longer life for patients with cystic fibrosis.

Our mission

The mission of CF Hero, z.ú. is to use technology to improve the quality of life of persons suffering from both rare and common diseases.

We provide smart solutions making the treatment of patients easier and more effective.

CF Hero z.ú. co-founded the Cystic Fibrosis Patients’ Club, which helps and supports CF patients in the Czech Republic.

CF Hero - therappy fun - logo

Our team

Father of a child with CF/ Co-founder

Patient / Co-founder

IT lead / Co-founder

Mother of a child with CF / Communication

Director of CF Hero z.ú. - Fundraising

Product manager

IT/developer

UX designer

Why are we doing this?

From our own experience we know how challenging it is to follow the daily routine for CF patients. Although the progression is often unpredictable, patients themselves can positively influence it by adhering to treatment and lifestyle choices. The goal of CF Hero application is to make long inhalations and respiratory rehabilitations that the patients have to undergo every day more efficient and effective.

CF Hero app smajlík
"Kyslik" bilý

Why are we doing this?

From our own experience we know how challenging it is to follow the daily routine for CF patients. Although the progression is often unpredictable, patients themselves can positively influence it by adhering to treatment and lifestyle choices. The goal of CF Hero application is to make long inhalations and respiratory rehabilitations that the patients have to undergo every day more efficient and effective.
CF Hero app smajlík
"Kyslik" bilý

How did the CF Hero mobile app come about?

9/2016
honza_marek_laborator
First ideas on CF Hero

We applied to an acceleration program operated by Vodafone Foundation with the idea of creating a mobile app helping children with CF.

4/2017
laborator_vitezny_tym
Winner of the main prize - Vodafone Foundation Laboratory

After the termination of the Vodafone acceleration program, we gained the main prize amounting to CZK 350,000 and invested it into first designs of the future app.

11/2017
Impact Award winner

We won the Impact Award category at Startup World Cup Summit.

11/2017
Fundraising campaign #bezdechu (outofbreath)

Our fundraising campaign #bezdechu on Giving Tuesday 2017 was a great success and Vodafone Foundation doubled the raised funds. In total we raised CZK 1,748,936 and used all of the funds for primary development of the Android version of CF Hero app.

2/2018
Netvor, B&H
Intense work on the app

In early 2018, we started working on the app design and development. Software development company Netvor became our partne. The unique look of the application was provided by the great and creative graphic studio Butterflies & Hurricanes.

6/2018
CF Hero na konferenci ECFS v Bělehradě
CF Hero at ECFS in Belgrade

We participated in the largest European conference on CF that took place in Belgrade and resented the CF Hero project abroad for the first time.

4/2019
CF Hero aplikace
App launched in the Czech Republic

Android version of CF Hero is available to Czech patients in Google Play store.

6/2019
CF Hero v Liverpoolu
CF Hero at ECFS in Liverpool

We went to spread the CF Hero name to ECFS, the largest European cystic fibrosis conference. This time to Liverpool.

6/2019
Blueberry neziskovkam vyhralo CF Hero
iOS app version developed as an award

We successfully participated in the "Blueberry to Non-Profits" contest. Out of 30 TOP candidates, we made it to the final three together with Junák and Demagog.cz and in the end the development team decided: For winning the competition, they created an iOS app version for us.

11/1019
recyf2019 a cf hero
CF Hero attended RECYF, an expert CF conference

CF Hero app presented at a physiotherapy workshop.

11/1019
CF Hero vyhrává DIGI@MED Award
DIGI@MED Award winner

CF Hero won the Czech DIGI@MED Award and received a prize of CZK 100,000. 

The award was donated by Roche to startups that had contributed to the digitization and modernization of medicine and healthcare.

11/1019
CF Hero na Slovensku
App launched in Slovakia

In late 2019, we released the Slovak version of the CF Hero app and introduced it at the 11th Slovak Cystic Fibrosis Conference.

07-08/2020
Ciencie konference Lisabon během PIB
International acceleration programs

In the summer, we took part in two international acceleration programs: HealthCare Lab and Patient Innovation Bootcamp.

This helped us move our future plans and app development further and make new contacts abroad.

11/2020
CF Hero na Healthcare Labu
Main prize in the HealthCare Lab program

The November ending of the Slovak acceleration program was extremely pleasing. We won the main jury prize of € 10,000.

12/2020
Vydání ios verze CF Hero
iOS version of CF Hero app launched in the Czech Republic

iPhone app version now available to young Czech patients in App Store.

02/2021
CF Hero spolupráce s Polskem
Works on Polish version started

Thanks to the Vertex Circle of care grant we started to plan first steps towards the Polish app version in cooperation with patient association Fundacja MATIO.

02/2021
CF Hero ios na Slovensku
iOS version of CF Hero app launched in Slovakia

In cooperation with the Cystic Fibrosis Patients’ Club, we released a Slovak version of the iOS app.

02/2021
CF Hero z.ú. založen
CF Hero, z.ú., a new NGO was founded

The CF Hero project, originally set up under the Cystic Fibrosis Patients' Association, now formally became independent. However, we are very happy that our bond with the Club remains strong.

07/2021
CF HEro na konferenci na Ukrajině
CF Hero attended the CF conference in Ukraine

We presented CF Hero app to Ukrainian experts and established a partnership with local patients’ association.

09/2021
CF Hero - začátek klinické studie
Clinical study concerning the CF Hero app was launched

In cooperation with doctors and physiotherapists from Motol University Hospital and Brno University Hospital, we started a clinical study on the app.

11/2021
CF Hero na konferenci v Krakově
CF Hero at a V4 conference in Krakow

We participated in a CF conference held by the V4 countries and advanced our collaboration with Polish and Ukrainian partners.

05/2022
new CF Heroes-PL
Launch of the CF Hero app in Poland

In cooperation with the Polish patient association Fundacja Matio and thanks to the financial support of the pharmaceutical company Vertex and the Circle of Care grant, we have launched the app for Polish patients.

05/2022
New_CFHeroes_UA_IG
CF Hero app in Ukraine

Thanks to the financial support from the European Union and cooperation with the Ukrainian patient association ВГО "Всеукраїнська асоціація допомоги хворим на Муковісцидоз", the Slovak Association of Cystic Fibrosis and the hospital in Ivano-Frankivsk, the app is free to download for Ukrainian patients.

Media & press

A talk with Honza and Marek about the newly available CF Hero app and life with CF

Marek and pediatric CF doctor Lukáš Homola in an interview on the emerging CF Hero app and the course of the disease.

Teenagers having fun with inhalation. What helps ‘salty children’?

Seznam TV – Morning Studio (2019)

Presentation of the award winning app at Czech DIGI@MED Award by Honza. (1:42:00 min)

Breathe with “Oxie” and fight cystic fibrosis; new CF Hero app encourages patients

Getting kids to exercise can sometimes be challenging. But if you combine a boring activity with a game theme, success is guaranteed.

Main partner

The CF Club was founded in 1992 by parents of children with cystic fibrosis. 

Active parents are still involved in its management and operation. 

Without their help, the staff could not provide all the services and activities for the benefit of cystic fibrosis patients.

Partners

Who supported us

We cooperate with

Support us

Since we wish to continue to develop the app, we will be grateful for financial support.

THANK YOU for any recurrent but also one-off contributions!

You can also support us by making a purchase on our e-shop.

If you decide to support us financially, we will be able to better and faster:

– Finance the app operation

– Add current content to the app

– Develop new elements

– Improve and prolong the lives of young patients not only in the Czech Republic




How to spread the CF Hero mobile app among other patients?

You can help spread the CF Hero app among other patients. Just fill out the form and we will then agree on how to proceed.

We can also supply you with leaflets presenting the app to your young patients.



Contact us

Contact us

Marek

“Our daughter was diagnosed with cystic fibrosis right after she was born. I was thinking over for a long time how to help the community affected by this disease. An idea was born and a few months later I founded a project with Honza and the Czech Cystic Fibrosis Club, which we are pushing forward. Personally, I focus mainly on the conceptual development of the app, negotiations with project partners and making sure that everything works well in the team. ”

Honza

“I have lived with CF for more than 40 years and I try to share my experience with other patients. I want to help optimize treatment and motivate CF patients. CF Hero app combines all these efforts, since the fall of 2016 I have been working with Marek and other great people in the team to improve the CF Hero application. My motto is “Keep inhaling and rehab until you feel well.” (It may often take as much as 4 hours a day). Only an active and well-informed patient can fight CF successfully. My role is to spread know-how regarding illness, equipment, treatment and research in the CF community, to communicate within the community and with experts on CF topics, web design and administration, and partially to work on graphics and fundraising. I have experience participating in clinical trials, I am a member of the SAWP at EMA.”

Babu

Development and all that is necessary from the comic script to lighting up the fireplace. ;)

CF Hero combines everything I love: technology, creativity, professionalism, healthcare, making the world a better place, helping people and working in a great team.

Míša

I have been a big fan of the CF Hero project from the very beginning because of Marek and our daughter Laura.

I am very happy to be part of a great team.

Since the release of the CF Hero app, I have been involved in marketing communication, graphic and text content of the app and the website.

Edita

I joined the team in the middle of 2019, when I was just thinking about where I wanted to go professionally. My friends had long been dedicated to helping the sick and I was happy to join them because I like being around meaningful projects. At CF Hero, I look for and explore resources, both financial and human.  

Kuba

Meaningfulness at work has always been crucial for me and here comes a great team, the opportunity to participate in one of the first telemedicine projects and, most importantly, to work on a project that seeks to prolong the lives of people with cystic fibrosis.

I found it all in CF Hero.

Michal

I came to CF Hero as a junior developer who wanted to broaden his horizons. However, in a relatively short time, the project grew incredibly close to my heart and I am honored to be part of our dev team.

Ondra

I joined CF Hero in February 2021 to help with UX of the app alongside my studies.

CF Hero is close to my heart because it’s a meaningful project which literally prolongs lives. On top of that, it allows me to work with incredible people who live and breathe for the same cause.

Together with Kuba we develop new concepts for features and app mechanics and then I design them. Throughout the whole process I involve and talk to children with CF, our end users, so the whole app is easy to use and fulfils their needs.

How to become a CF Hero partner?

Our partners include patient associations, acceleration programs, foundations in the non-profit sector, corporate foundations and companies.

If you wish to become a partner, submit the form and we will look for the right form of cooperation.

We will be happy to contact you and look forward to hearing from you. 

Yours

CF Hero Team

CF Hero - mobilní aplikace pomáhající zlepšit život lidem s cystickou fibrózou - obrazek "Kyslika"

Want to help
CF Hero?

You’re right here. Choose one of the ways you want to help and submit the form.
We will contact you.
Thank you very much, CF Hero team.

CF Hero - mobilní aplikace pomáhající zlepšit život lidem s cystickou fibrózou - obrazek "Kyslika"

Do you want to cooperate?

You’re right here. Choose one of the ways you want to collaborate and submit the form.
We will contact you.
Thank you very much, CF Hero team.

CF Hero - mobilní aplikace pomáhající zlepšit život lidem s cystickou fibrózou - obrazek "Kyslika"

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